Well, Monday was Joe's 6mos evaluation with First Steps. While we feel that he has made progress he has not achieved any of the goals we set with them when he started the program. We've increased Physical Therapy to twice a week instead of the once that we've been doing - I really love our PT so I'm glad to be working with her more in depth. We'll be continuing with the Developmental therapy once a week. And as soon as an Occupational therapist has an opening in their schedule we'll be adding that too. We've left it open to possibly add speech therapy later if needed. There weren't any real surprises at that meeting, it went about how we thought it would.
I called the developmental pediatric office at Riley yesterday and was able to find out that the results of all the blood tests that were done at our visit in June had all come back normal. We are still waiting for the results of the urine tests.
Today we met with a pediatric neurologist at Riley. We feel better about this appointment than we did about the one with the developmental specialist in June. We did not have to wait forever (I mean, its a doctor's office, of course there was waiting, but much less than last time). She actually seemed to test his abilities for herself instead of only asking us questions about his development. She seems to think that Joe's delays are due to a muscular problem and probably not a neurological problem. She had us schedule an EMG and she does want us to get an MRI also to rule out neurological problems. She also wants genetic blood testing done to see if Joe has Spinal Muscular Atrophy.
We are in the process of trying to get new insurance since what we have now does not cover any major medical expenses at all. Basically, it covers routine doctor visits, the occasional ER visit and thats all. We cannot afford to be paying out of pocket for all these tests and doctor visits to specialists. So, we're shopping for insurance. We plan on following through with the recommended tests after we are able to find some better insurance.