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Joe had alot going on last week. Tuesday he worked really hard during Occupational Therapy. He sat for 5min on his own and again for 8min. Then later that night he sat unassisted for sixteen minutes. That was really exciting. Not alot of people understand how big a deal that is for him and for us. His progress seems so slow to me sometimes. It does my heart good to see a milestone like this come along. He's been working really hard in therapy.
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Wednesday we went downtown and he got fitted for his orthotics. They took a mold of both his feet and they will make the inserts from those. We'll get them back next week. They are plastic inserts that will help keep his ankles from turning in when he stands. We went as a family to this appointment. Nate helped pick out the design. It was fun to have him be involved in the process.
Thursday we spent a few hours at Riley while Joe got an MRI of his head and spine.
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Children his age have to be sedated for them to lie still enough for the doctors to get a good picture. It was so sad to see him hooked up to oxygen and being put into that huge machine. But he was a trooper and did really well with the whole thing. I was really glad when it was finally over and I could hold my little guy close again.
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Friday I took Joe to IU Hospital for an EMG. They tested both his nerves and his muscles. It is kind of complicated and I'm not sure I really understand it well. The first part wasn't so bad, they used a couple of sensors to test how well his nerves send messages. Then the second part he was stuck with a very small needle and then probed around listening to his muscle movement. He was not a big fan of that part, but did really well despite his discomfort. This did not take nearly as long as the MRI - thank goodness.
Well... it was a long, draining week. We will not really know what the results of the tests mean until we see the next doctor (a genetic neurologist) in November. I have stressed alot over these procedures. I am tired from worrying and tired from running back and forth to doctors' appointments. I'm glad that we won't have anything big coming up for awhile. Thank you for your continued prayers.
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