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So, given the change in insurance we will be able to go forward with the MRI, EMG, a visit with a genetic neurologist and blood testing for SMA. Those will all happen over the next couple of months.
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Josiah started Occupational Therapy last week. I liked the OT right away, she seems very nice and down to earth. I think she'll kind of be doing a mixture of some of the same things that PT and DT are already doing but she will also help with things like fine motor skills and eating, etc.
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I just got a call from our First Steps coordinator saying that Joe got approved for speech therapy too. So, I'm in the process of looking at the profiles of a dozen or so speech therapists trying to decide who would be best for Joe. I'm thankful that my cousin (who is a speech pathologist) gave me a few tips on what to look for while choosing the therapist. Once we start speech we'll have three therapists coming 1 time a week and one coming 2 times a week. That is alot of therapy. I hope its not too much for Joe... or me! * I'm thankful that First Steps provides all this therapy for little guys who need it like Joe does... but what about the rest of us? Where is my therapy? ;-)
We've talked with the some friends from church who have dealt with developmental delays with their children and its nice to know they are there and understand what we're going through. I also appreciate having my aunt who has been through the medical system with her daughter that I've been able to talk to alot. And I have a cousin who is a speech pathologist that I've been able to talk to. God has put people in our lives for me to lean on. I just don't know how to do that well. I am better at being a care-giver than I am a care-receiver.
Well, that is all for now. As always, your prayers are much appreciated since this is far from over. We appreciate all the love and support from our family and friends.
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3 comments:
Yay for your new insurance! Sounds like he is making progress. He's a beautiful little boy.
My understanding is that First Steps has or tries to have a network of counselor referrals available to the parents of children who are participating in their services. LeLyne's sister Mendy is a resource for First Steps and has told me that I could easily get plugged in as a referral source because of my MFT degree. I don't know if you have an overall case manager for the First Steps that you could ask or how it works for sure but you might want to inquire further :)
~April~
That's wonderful news Lawana!
And wonderful that Joe is making progress.
btw-I wanted to thank you for telling us about the writing workshop that was held last weekend. I took Alec up there and he had a great day! He learned so much.
Thanks again!
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