Yesterday we had Joe's appointment with the developmental specialist. I hate how our expectations sometimes taint our perception of an event or experience. I don't know why but I was expecting him to be in a play therapy room being challenged to do things and people would be taking notes on his physical behavior, etc. Not what happened.
For one thing - I had called the day before to get an idea of how long it would take and I was told an hour. Wrong-o. We were there for three long hours.
There was no cute play therapy room like I thought there would be. We were taken to a weigh and measure room (I'm sure you can guess what they did there). Then to a normal cold, sterile doctor's exam room, where we waited for the doctor. There were a few toys (very dirty ones) on the table but they were never brought out. The doctor was very nice. But she proceeded to ask a series of questions (most of which we had already answered in the paperwork we filled out) about Joe's health and development and family history, etc. She barely even looked at him.
She didn't have anything to say that we didn't know already. She just gave new words to describe what we already knew: "globally delayed" meaning he's delayed in all areas equally.
She ordered a barrage of blood and urine tests to test for a myriad of disorders, diseases, and who knows what else. But she even said herself that we may or may not even find anything out from these tests that will cost thousands of dollars. She recommended that we cancel the appointment with the pediatric neurologist that I worked so hard to get and see some other doctor (a genetic neurologist) who will take much longer to get in to see.
We talked to a social worker about possible supplemental insurance to help with the impending doctor bills that will be coming as we continue to search for answers to Joe's delays in development. We talked to a nutritionist because they thought he was a little on the slender side. So they want us to add sugar to his food to give him extra calories. I don't see why adding pure sugar to a healthy baby's diet would help anything - even if he was underweight - which he's not. Anyone who has seen my boy can see that he's not malnourished. He's got more rolls than I do... well maybe. Then we went and had his blood drawn for the tests. Joe was such a trooper! He hardly cried at all while the nurse probed his little arm for a vein and filled vial after vial.
We followed up the draining visit to the hospital with a visit to our herbalist. That was a much more encouraging appointment. In alot of ways I am more confidant in natural remedies than in modern medicine. But at this point we feel we need to pursue as many avenues as we can to figure out what is going on with our Little Joe. Even though my feelings on the subject are often a roller coaster of highs and lows, ultimately I do have confidence that if we are patient and wait on the Lord's timing that we will continue to see improvement in Joe's development. Your continued prayers are much appreciated. Thank you.