We are in the process of trying to get more therapy for Joe. He has been seeing Physical and Developmental Therapists for awhile now but we'll probably be adding Occupational and Speech sometime soon. And hopefully we'll be getting orthotics for him soon too.
We followed the recommendation of the social worker at Riley and applied for supplemental aid/insurance to help with the medical bills that have and will continue to accrue as we try to help Joe and figure out what is causing his delays. We were disappointed to find out that we do not qualify for the aid that we had applied for. Our insurance that we have now is great for healthy people and anything "normal" but anything out of the ordinary is hardly covered at all. Its just frustrating that its so hard to get help when you need it sometimes!
I am not in denial. I am not stupid... I know that my son has developmental delays. We are making the steps needed to help him. We're not trying to pretend that everything is "normal". However, I am having a hard time thinking of this as a potentially lifelong struggle for him and us. It completely overwhelms me to think of him being this way forever. I'm still clinging to the hope that after more therapy he may catch up eventually and lead a fairly normal life someday. Deep down I know that he might not... but I have to believe that its a possibility. If I didn't have that hope I would fall apart (even more than I already do).